Years ago when the True Bias Roscoe was first released, I wanted to make it but the original sizing was a few inches smaller than my own. The finished measurements were probably okay at first but then I grew a bit more with my disability majorly limiting my mobility. Now the Roscoe is in sizes … More True Bias Roscoe Dress and an EDS photography show
Hi Everyone, I’m pleased to announce a new project I am starting. It’s a place for chronically ill sewists to ask questions, share inspiration, and also feel safe to talk about sewing issues that arise with chronic illnesses. This includes both physical and mental chronic illnesses. Introducing @ChronicallySewn. For now, it lives on Instagram, but … More ChronicallySewn on Instagram
Trigger Warning: Suicide awareness I have many doctors appointments and medical tests on a regular basis, but I still manage to not get effective care from many of my healthcare providers. My chronic cough remains undiagnosed and not effectively treated. My allergy attacks are getting more frequent and leaving me breathless and drugged on … More How the Medical System Fails People with Chronic Illness
April was a busy month for me. I was slow to recover completely from the pneumonia. I am still a little low in energy in comparison to before, but the pneumonia is definitely gone. My chronic cough is now being managed fully by medication. I’m so relieved that it is finally responding to the many meds … More Blank Slate Oceanside Shorts
The tale I have to tell you. 2017 has been horrible so far, but things are finally feeling a bit better. Back in December, I got sick. I had a cold over Christmas. I didn’t think anything of it, but then January and February I got worse and worse until I couldn’t walk in February and … More I’m Alive!!
I’m not reliable. I’m not present. I have a chronic illness and have been very very sick in increasing ways the past two years. Last Spring, I was diagnosed with one rare disease, Ehlers-Danlos Syndrome, which is all about joint issues and chronic pain. I have had a chronic cough for 9 months now and … More Chronic Illness and Reliability
I have Ehlers-Danlos Syndrome. It’s a genetic disorder that means I produce defective collagen. Collagen is in every part of the body including skin, muscles, tendons, and cartilage. As a result of my defective collagen, my joints are hypermobile meaning that they bend back far beyond where they should. Think of an elastic that is … More Sewing for Accessibility